Hemophilia B
Real World Experiences
Dr. Doris Quon and her team at the Orthopaedic Hemophilia Treatment Center offer practical advice for implementing gene therapy for hemophilia B based on their real world experiences. These videos aim to support physicians, nurses, pharmacists, and administrators during the gene therapy journey while maintaining optimal hemophilia care for patients.
Advice for the community
What best practices would you like to share with other treatment centers preparing for gene therapy?
How have your patients' lives changed since gene therapy was administered?
What would you say to a treatment center that is still deciding whether gene therapy is the right choice for their eligible patients?
What would your advice be to teams who plan to administer gene therapy at their centers?
What motivated your care team to administer gene therapy at your site?
Preparing the site for gene therapy
What challenges did your hemophilia treatment center encounter when preparing to administer gene therapy? How did you overcome them?
What are some important steps you and your team took to prepare and set up your center to administer gene therapy?
How did your team approach the ordering and receipt of gene therapy?
How did the treatment center staff prepare for the infusion?
How can nurses support patients across their gene therapy treatment journey?
Supporting patients through the journey
How does the center and care team provide support to eligible patients to receive gene therapy?
What approach did you and your care team use to determine eligibility and suitability for treatment with gene therapy?
How do you support your patients through the decision making process?
How did the treatment center staff prepare the patient for infusion?
How does your center prepare itself and the patient for the monitoring required post-infusion?
